Usually, parents of children with developmental differences coordinate the work of all specialists and work closely with their child. Our family becomes the center of medical and rehabilitation control for the child, and communication, as well as coordination between doctors and other helping professionals, rests heavily on them.
So, how can parents stay on top of their role, keep up with new protocols, establish effective communication between specialists, avoid miscommunication, and reduce dependence on devices? How can they set goals during the pandemic and evaluate outcomes?
Elmira Safarova, Ph.D. in biological sciences (molecular biology and pharmacology), founder and CEO of Rarus Health, a digital platform for families with rare genetic diseases, will share tips, observations, and thoughts on these matters with us.
You can submit your questions using this form, and we will address them during the live session. Alternatively, you can register to participate and ask your question directly. A link to the session will be sent to the email address you provided one day before the event.
Webinar Hosts:
- Nika Grigorieva, founder of the Williams Syndrome Foundation and mother of Masha, a child with Williams Syndrome.
- Elena Bagaradnikova, mother of a child with autism and founder of the “FORA” project.